Sweethearts Candy Blog's

I know, I know, it's early for some of us to think about school, but I've already started getting many questions and hearing concerns from parents who are about to send kids to school for the first time. Plus, there is so much to do, it helps the stress level to start early and avoid the mad rush right before school begins.

It can be scary to contemplate dropping your young child off at school with the knowledge that they will be around food and situations beyond your control, sometimes for the first time. However, if you keep open communication with the school and stay on top of things like parties, you will be one step closer to ensuring a safe and enjoyable school year for you, your child, the teacher and everyone in the class.

July is a good time to get started. If your school office is currently closed, try setting up meetings via e-mail for later in the summer. The important thing is to make contact early so that you can iron out details before the first day of school.

Here are a few things to do this month:

•Schedule any doctor's appointments and have your allergist complete important paperwork such as Food Allergy Action Plans, notes and other medical documents that you need for the school nurse or a 504 Plan if you have one. Make sure to include recent photo of your child (such as a school portrait) that can be glued/taped onto their emergency plan. FAAN has Food Allergy Action Plans on their website.

•Schedule a meeting with the principal and district nurse. If they are on vacation, send them an e-mail or leave a phone message with the distrtict asking for a meeting before school begins. Many schools offer these meetings for parents to discuss everything at one time. This meeting would also be a time to discuss things like peanut-free tables.

• Review your current EpiPen prescriptions and renew them if necessary. Have at least 2 EpiPens for school--one for the health office and one for your child's classroom. Make sure your prescription is current and that you sign up for the new EpiPen registery (there is also a form is included in your prescription.) It lets you know when your Epis are about to expire.

•Invest in an EpiPen carrier for your child -- great designs and colors can be found at Kozy Epi and Activeaide.

•Make sure your child has a Medical ID bracelt (or other medical ID jewelry)such as you'll find at Lauren's Hope (I just interviewed them for this blog) and Hope Paige medical ID jewelery. If your child feels fashionable, her or she will be more excited about wearing this important item.

•Stock up on lunch gear for all those packed lunches you'll be making. Green to Go, offers handy, reusable lunch containers for back-to-school with the added bonus of being eco-friendly.

Full disclosure: Green to Go, Lauren's Hope and Hope Paige, mentioned above, are advertisers on this blog. Click their logos if you'd like more info about any of these companies.

As the school year comes to a close, many schools are planning end-of-year celebrations. Also, a lot of school clubs. sports and activities will have their end-of-year parties. Of course, that means food! Now's the time to plan so that your child can safely enjoy any end-of-year school celebrations.

1. Give the teacher a heads-up now. Don't wait until the week of, or even a few days before. Speak to the teacher, send an e-mail, pick up the phone, your choice, but make it a point to find out what is going on with regard to food. Does food have to be offered? If it is, offer to send in a safe treat and then emphasize that your child sticks to that and that only.

2. Check the crafts. Are any edible crafts being done or is food being used for inedible crafts? Ask now. These are a bad idea unless everyone is on the same page about what is safe and what isn't. I've found that is usually not the case, so suggest an alternative craft if you must. The store Michael's has tons of craft ideas; so does Target.

3. Discuss with your child the possibility of "extra" food. Some parents like to send in homemade treats at the last minute as an added "surprise" for the class. While this is well-intentioned, it can undo the careful planning you and other room parents may have done to ensure "safe" party foods. Communicate with the party organizers to find out what food will be present and then discuss with your child a few items that they can safely eat. To stay on the safe side, make sure that your child understands that anything outside of that zone is off-limits.

4. Send home a note a week before the party. Ask your child's teacher to send home a reminder note of what to avoid sending. If you have a dairy-free, nut-free classroom, for example, be sure to include some suggestions of safe brands and treats. If people are intent on bringing food, at least they will have some idea of what is OK for the kids with allergies.

5. Role play with your child. This may be the most important point. It's never too early to teach a child to refuse food they are not sure of. Our rule has always been: "When in doubt, do without." Teach your child to be polite but firm when offered food that may not be safe. This would pretty much include all candy and baked goods you have not sent to school, but pretzels, chips and popcorn brands can also be unsafe. Our daughter has always refused food since she we knew of her allergy and your child can learn to do the same. They will need this skill their entire life; why not start now?

With the recent peanut allergy-related death of a Chicago 7th grader and the also recent enaction of FAAMA, it seems that schools may finally take food allergies more seriously. Still, resistance to using or even keeping EpiPens in schools is prevalent.

See this article from today's Chicago Tribune, an excellent piece that covers the main points that parents are interested in with regard to keeping kids safe at school. I especially appreciated the expert opinions such as that from leading allergist Dr. Scott Sicherer, who pointed out that many reactions that occur at school are from undiagnosed kids. He rightly suggests that having EpiPens at school as a matter of course can save lives.

I can speak to this situation, as my daughter was undiagnosed when she experienced a severe, life-threatening allergic reaction at preschool. Nothing was done for her there and I soon found myself in a nightmare that luckily had a happy ending. It was frankly a miracle my daughter didn't stop breathing--she had every other symptom and even lost consciousness during the episode. She was 4 years old at the time.

The current Tribune article doesn't cover preschools. That's an entirely different can of worms that I will address in a future post. However, it does uncover what many parents of food allergic kids have known all along: people are reluctant to use an EpiPen even if they witness the symptoms of anaphylaxis. Plus, currently no one will use an EpiPen on your child unless you have the doctor's order. So please have your documentation and orders on file. It's so important.

However, as the Tribune article also reveals, even that's not enough. As parents we must continue to be proactive and involved with our schools. We must monitor situations that are dangerous to allergic kids--and that means any food from a restaurant or a home kitchen. There is never a valid, curriculum-related reason to serve this stuff and yet you'd think banning restaurant food and home-baked cupcakes from a classroom is akin to getting an F on a midterm. I never saw this much food brought to school when I was a student and I don't know why we're seeing it now.

Even with FAAMA, food allergy emergency plans and EpiPens easily accessible, schools won't be safe until people understand what food allergies mean, what cross-contact means and that "peanut-free" doesn't only mean "recipe that doesn't contain peanuts." An understanding of what triggers a reaction can frankly remove any need for EpiPen usage--because reactions won't happen if they are prevented.

The article also sites sobering statistics for those of us sending peanut and tree nut-allergic children off to school each day. What allergies are the most deadly? Peanuts first and tree nuts second. And people wonder why we don't want our kids constantly exposed to food all day long.

If the tragic case of the Chicago 7th grader can have any positive impact, it is to show that half-measures and misunderstandings with regard to food allergies are not only unfortunate and ill-advised, they can be deadly.

Along with the passing of laws, which are just pieces of a larger puzzle, parents need to keep bringing home the fact that food in the classroom needs to be drastically reduced or eliminated unless absolutely necessary--i.e., actually meal times. Lives depend on it.

With the school year half over, now is the time to update or address any ongoing issues at school. You may also need to restock essential supplies, be it updated EpiPens or safe treats for class celebrations.

At this point of the school year, you probably have a pretty good idea of how your school is handling food allergies. If there can be improvements made, now is the time to say so. After all, teachers have now had an opportunity to see how often food is brought into the classroom, often with no forewarning.

I hope you'll check out my Chicago Parent article about food allergies in the classroom. These tips can be used all year long.

Here are some things that may need an update as the school year begins its second half:

Check with the Health Office regarding meds. Are all of your child's medications up to date and unexpired? This can include EpiPens, of course, but also Benadryl and asthma medications. You will also want to make sure any new staff are up-to-date on EpiPen usage.

Are food allergy policies being followed consistently? Something tells me I'm going to get a lot of mail on this point. :) By now you've had experiences in the classroom, both good and bad, that will alert you to what procedures are taking place. You may need to issue some reminders and just be aware of what goes on at parties and such. For example, I volunteer each year to send food to the classroom for my daughter's parties but others always send food at the last minute and guess what--it's usually unsafe. Other times, lunch room policies go by the wayside or class size prevents safe lunch-eating areas for allergic kids. If you notice any problems, now is the time to discuss your concerns with your child's teacher and/or school admin.

Send in a new stock of safe treats. Even though our school doesn't allow b-day treats, sometimes treats are offered for unexpected rewards or celebrations. Ask your child's teacher to store some safe treats for your child to turn to if a surprise treat is offered at school. If your child is older, have them keep some packaged treats in their locker or backpack.

Evaluate what is working and what isn't. You and your child's teacher and other admin if necessary may need to make some adjustments based on experiences you've had in the first half of the year. In fact, expect this because you can't know what every situation will entail. If you feel some things should be changed, don't delay in scheduling time to talk to your child's teacher or other school staff.

A final word: a lot of people ask me what to do if schools don't "get" food allergies. Unfortunately, every school is different but one thing remains the same. You are your child's best advocate and if you really feel that something is endangering your child, please speak up. Some problems can't be solved overnight but if you opening a dialogue is a good first step.

Many of us are getting our paperwork ready for back to school, or for a lot of us our child's first year of school--the big K--kindergarten. Even a seasoned food allergy parent like me gets a little queasy just thinking about what can go wrong at school. What helps me feel a lot, lot more in control is having a current copy of my daughter's Food Allergy Action Plan on file at the school office.

Do you have your Food Allergy Action Plan ready yet? Here is a link if you need a copy, available from the FAAN website.

The action plan will show the school staff every symptom to look for and action to take in the event of a reaction. I know that schools use these--we had a false alarm in 2nd grade and the school health aide followed it to the letter. In the end there was no need for medication--but they wouldn't have known this without the emergency action plan.

Make sure that your doctor fills out the form completely and that they include any special info needed. For example, does your child have asthma? Other health conditions? The form provides space for all of these. This form from FAAN is very clear and easy to read--my doctor said it was the best one he ever saw!

Here are a few other tips for a successful Food Allergy Action Plan:

- Print it on neon colored paper so that it's easy to spot in the event of an emergency.

- Be sure to include a current photo of your child--I usually use last year's school yearbook photo--so that substitutes and other staff recognize your child as the one with the allergy.

- Make sure the form is complete before submitting it and include a post-it with your phone number that offers to answer any questions about your child and their allergy.

You have time left before school starts so get this form into your allergists now--why wait? You'll beat the mad rush at the end of the month.

I recently found out that the new school that my daughter will attend in the fall does not have an "official" peanut-free table. However, the principal said she will work with us to accomodate her needs and that they have many students with peanut allergy.

Currently, my daughter sits at a peanut-free table with kids who have not brought peanut butter. This has been good from a safety standpoint, and not so good from a social standpoint, at least some of the time.

She is going into 3rd grade and certainly knows to avoid certain foods. I trust her. Also, she does not react if she smells peanut, but she doesn't like the smell. She's repelled by it, which is different than having an allergic reaction from it. I don't know if she'd feel uncomfortable if she sat with kids eating PB & J. She's done this on field trips and I know she's been OK with it. Also, someone watches her and all the staff know about her allergies. Obviously, we're going to have to work out the same deal at her new school.

I'm kind of pysched at the thought of her not being excluded from her friends, while at the same time I worry about her safety. But it got me thinking: with all the other "top 8" allergies on the rise, is it even feasible to have a "peanut-free table?" You'll also need a milk-free, wheat-free, egg-free and soy-free table at some point, right?

I'm not sure what we will propose to the principal. I was thinking of a making a "peanut-free" area of the table, but I don't know if that would make it better or worse for her.

What do you think? How have your schools dealt with these tables and/or multiple food allergies?

My family plans to move this fall in order to be closer to my husband's (relatively) new job. We are excited about this move and have been planning it for some time, so that's not an issue. I won't bore you with all the horror stories of a buyer's market, but our plan is that our daughter will be in a new school next year.

As our move gets closer, I've started to realize that, just as my daughter has fears about being in a new school environment, so do I. After all, I've ironed out every last detail with regard to food allergy management with so many people: my daughter's school principal, nurse, teachers and even the parents of her friends. But now I'm going to have to start from the beginning.

I'm not going to lie - even for a seasoned "Nut-Free Mom" like me it's kind of scary. Every school has a different policy (more on this in a future blog entry! :)). For food allergy families, school becomes like a box of chocolates: you never know what you're gonna get.

So, I say, Be prepared, not scared. For allergic families, that's as good a motto as any. You need to talk to the school and find out how the district handles food allergies, pronto, so you can prepare your family for a smooth transition.

If your new district does not yet have a formal policy, I suggest printing out the Wilmette Public Schools food allergy policy and sending it to your district's superintendent of schools as well as the principal. This is the policy that was finally adopted by my daughter's current school district after a small group of parents (including yours truly) brought it to their attention. It's a good one!

Other things you can do to prepare:

1. Work with your doctor to prepare an easy-to-follow action plan. Your school is going to want one of these, first and foremost. If there is ever an emergency, your written plan is what people will follow, so make sure it's thorough and clear. FAAN has food allergy action plans you can download and I suggest filling one out with your doctor ASAP. Then, make copies for the nurse, teachers and whoever else may need one. Include your child's photo for easy identification in the event of substitutes or staff changes.

2. Meet with the principal before the first day. A face-to-face meeting is a great idea that will do a lot to a) show administrators you care and b) attach a human face to your child's medical issues. This is a great time to discuss any questions you have about school policy. Principals are busy people so it doesn't hurt to jot down some"talking points" before you meet. I'd schedule this meeting, if possible, before the end of the current school year.

3. Renew prescriptions and make sure you have enough EpiPens for all staff that require them. The school my daughter attends is relatively large, so she has 3 Epis for school: one for the nurse's office, one she carries on her person in a "fanny pack" and one in the cafeteria. That way, no one is racing around looking for one in an emergency.

I'm sure there is more I will think of as I prepare, also, but this is a good start.

Since first grade, my daughter has been designated to sit at a "peanut-free" table in the lunch room at school. At her school, each class with an allergic child has its own peanut-free table, so she does have the opportunity to sit with kids from her class.

I feel that this table is a "necessary evil" at this stage, because she is still so young. I say "evil" because while it does prevent her from coming into contact with ever-popular peanut butter, it can sometimes be at the cost of not being able to socialize with some of her friends at lunch.

The peanut-free table has had its ups and downs for my daughter. Sometimes, several children congregate at this table--other times, not so much. It seems to fluctuate like the weather.

Even though I know that being "stuck at one table" is painful for her at times, it is even painful for me to contemplate her being left out or in some way ostracized.

Still, the peanut-free table has had its silver lining. For one thing, my daughter has had to learn to extend herself to others more, by seeking them out and getting to know them. She's found that she has a bigger group at "her table" when she goes out of her way to get involved with the other kids. Not a bad social lesson to learn at any age.

Another nice side benefit: compassion for others. This year, one of the kids in my daughter's class has some developmental disabilities. She has sought out this child from the beginning of the school year, adopting the role of "helper" and special buddy. I praised her for her actions and she said, "Mom, I know what it's like to be different."

I wish that she could choose to sit wherever she would like. However, I'm not sorry that she has learned a few things at this table, things that have to be learned from one's own experience and not necessarily from a parent or teacher.